Tag Archives: desire

Finding Each Other: Building Legacies of Belonging

*Opening keynote speech at KQTcon 2018, the first national LGBTQ Korean conference in the United States, in New York City on 4/7/18.

 

To listen to the live recording from the conference, click here: KQTcon 2018 Keynote. (Thank you to Asia Pacific Forum for the recording!)

 

[photo of the words “queer korean” and a heart below them written in light in the air at night next to a fire.]

Thank you so much for having me here today.

 

I want to extend gratitude to the folks on the planning team who put this conference together. Anyone here who has ever put on a big event knows that it takes a lot of work. And specifically, I want to acknowledge, not only the logistical and grunt work put into this conference, but the work it takes to go from having an idea to actually deciding to make it a reality. It takes a lot of initiative and courage to put yourself out there like that and step into leadership. So, I want to appreciate all of the different types of labor that you all have put into this.

 

Thank you, because I grew up in and spent most of my life in places where I never had access to any kind of spaces like this. So, I don’t take it for granted and I know how much this kind of gathering would have meant to me when I was younger. I hope none of us take this space for granted because there are so many queer and trans Koreans who would give anything to have and be in this type of space; would give anything to be here.

 

I want to send gratitude to the people who built and care for this building every day and all the unseen and forgotten labor that goes into that. The people who clean the toilets, dispose of the trash, mop and vacuum the floors, care for the grounds. The people whose land this originally was as well as all of those who have been displaced since then.

 

 

I’m honored to be speaking at the first national gathering of queer and trans Koreans in the US. Thank you for inviting me to be here. Thank you all for being here and for being part of this space.

 

I want to acknowledge what it means to have someone like me speak at this conference. What it means to have a queer physically disabled Korean transracial and transnational adoptee woman survivor raised in the Caribbean speak in this space. I never thought that anything like that would happen. I am queer Korean and yet, often times I’ve learned that “queer Korean” or “Korean” doesn’t always mean or include me. And I am sure that many of you have also felt this.

 

I want to acknowledge what it means to have a visibly, physically disabled Korean speak, when most queer and korean specific events or events put on by queer Koreans rarely, if ever, mention accessibility on their event information. Queer and trans Koreans who rarely, if ever can even engage in a conversation with me about what it means to be queer and trans, korean and disabled. How can we talk about gender without talking about bodies and disability? How can we talk about what it means to be Korean without talking about the impact of violence, imperialism, colonization, war, militarization and legacies of abuse and separation on our bodyminds, psyches, hearts and relationships? And that is completey connected to ableism.

 

I want to acknowledge what it means to have an adoptee speak when so many queer Korean spaces haven’t done the best job at making space for us. When so many of us are queer and share the experience of finding “queer and trans family” and searching for our people, our history, our place within the korean diaspora. When we represent the pain of separation, unthinkable survival and resilience in the face of life-altering violence, returning, reunification and the unbreakable longing of Korea and the Korean diaspora.

 

I say all of these things because it is not lost on me that many of the reasons I was invited to speak, are the very things that have made it so hard for me to be part of queer and trans Korean, and Korean american community. I say this because whenever we come together it is our differences that get emphasized and the contradictions they represent become more acute. And we have a lot of differences. We may all be queer Koreans, but we are also many more things. When I think about what it means to be queer and Korean, I cannot separate it from all of who I am.

 

I can’t separate it from being an adoptee or being disabled or growing up in the Caribbean or being a survivor. I can’t separate it from growing up in a small, rural feminist community, surrounded by lesbian and straight women who worked side-by-side to respond to violence against women and children. I can’t separate it from the reason I was even on that island in the first place. Can’t separate it from the surgeries I had once I got to the US that I can’t even remember because I was so young. Can’t separate it from growing up as a visibly, physically disabled child. Can’t separate it from coming into my queerness in the South, in a vibrant and loving queer community that was predominantly Black. Can’t separate it from navigating QTPOC spaces with a visible, physical disability. Can’t separate it from my Korean mother asking if the reason I don’t have a husband is because of my disability.

 

How do you divide-up and measure longing? My longing for queer people and queer love. My longing for Korea and a family to which I will both always belong and never belong. The longing to be able to have at least one conversation with my Korean mother without a translator before she dies. The longing for queer Koreans who want to hold all of who I am, not only when it’s convenient or for political gain. The longing for both queerness and Koreaness, which led me to the most magnificent love I have ever known (or known of) with a queer Korean from the South.

 

I say all of this to say, what is Koreaness? What does it mean if it means something so very different to all of us? What does it mean to be Korean specifically in the US, in this historical moment as the fears of nuclear war rumble through the country? What does it mean to be part of the Korean diaspora in the US, given the role of US imperialism, war and occupation in Korea? In this historical moment of US racial and immigrant justice movements as the legacy of state sanctioned violence against Black people continues to roar forward, against a backdrop of ICE raids, deportations and seething anti-immigrant contempt.

 

I say this to ask, where does my story fit into the legacy of queer and trans Korean people and community? Where does your story fit? And how can we commit to sharing our stories with each other—our whole stories—without fear of losing each other? Because the one thing I know about queers and Koreans is that we know how to find and hold on to each other—sometimes to a fault. We know how to take care of our own, even if we are strangers to each other, because we know we are never truly strangers to each other. And we know we are all we have.

 

For example, I think about the ways that queer APIs in the South would stretch for each other and take care of each other. I think about the times when I opened my home to strangers, without hesitation, who needed a place to stay or a meal to eat or a safe person to be with. I think about the times when that same loving care was extended to me and how these were the ways we learned how to survive. These were the ways we knew we would survive because we did not have the luxury that queer APIs did and do in other parts of the country. This was one of the ways we built small islands of belonging in the middle of a raging river.

 

 

In preparing to write this keynote, there was a part of me that thought, What do I have to say that’s even worth anything? A lifetime of isolation and not belonging anywhere doesn’t go away easily. But then I thought, if I don’t belong here, where else would I belong? How can I not belong here, when I am queer Korean? How can my story not belong here, when my story is queer Korean? As queer and trans Korean people, if we don’t belong to each other, then to whom else do we belong? If we don’t love and accept each other, then who else will?

 

Because on the one hand, it’s true, I don’t belong anywhere, like many of you also probably feel. And on good days, it can feel like a slow, dull, throbbing ache, while other days, it can feel acutely, excruciatingly unbearable. Belonging can be a hard thing to believe in. It can be a hard thing to believe you deserve. It can be a hard thing to be able to even feel.

 

Most days the canyons that loneliness and isolation have carved out inside of me feel impossible to cross. They feel insurmountable and I know most of you in this room have those moments too. But then I think about the powerful legacies I am a part of and the people who have risked their lives for me to have a shot at something more than hopelessness. I remember all the people we’ve lost to loneliness and despair and isolation and longing and pain, whether their own or someone else’s. And I muster myself up and I choose to try; I choose to leap; I choose to love and reach out—to you and to myself. I choose to share; I choose to trust.

 

In that spirit, I want to share a little bit of my story with you; my queer Korean story. It is not the full story by any means, but it is a practice of hope; a practice of trust; a practice of love for you, my kin; and a practice of risk—because hope, trust and love are always risks we take with each other and ourselves.

 

 

I am a queer disabled Korean transracial and transnational adoptee. I was adopted from Korea at 6 months old, by white parents on to the small island of St. Croix in the US Virgin Islands. I was adopted a hair before the peak of Korean transnational adoption and I am one of the few Korean adoptees that I know of who were sent to the USVI.

 

I contracted polio before I was shipped to the US and I arrived in the US needing immediate medical attention and spent most of my childhood in and out of doctors and practitioners’ offices. Most summers I had a surgery on either my ear or my leg—or sometimes both.

 

I experienced so much trauma and violence in the medical industrial complex (MIC) that even now, I still try and avoid it at any cost. On top of the regular onslaught of ableism that disabled children face, I was also sexually abused in the MIC. I know it had everything to do with being a disabled girl of color; being a tiny Korean girl whose body was handed over to a white male establishment by white parents who didn’t know how dangerous that was. I know that the violence of adoption helped to normalize the violence I experienced within the MIC, both the gross abuses of power, as well as things that are still considered standard practices. It was impossible to separate the violent erasing of my disabled self via ableism from the violent erasure of my Korean self via transracial and transnational adoption.

 

I wore a large fiberglass brace on my leg until midway through college and it was excruciatingly hot under the Caribbean sun. It would give me blisters and pain and I hated wearing it. It often made me stand out, along with my limp and being Asian, and to this day, I don’t know what it is like to not have people constantly stare at you; constantly watch you. I often think that disability and being a Korean adoptee contributed to my ability to be a public speaker: I am used to being a spectacle and having people stare at me. People ask adoptees of color just as intrusive and offensive questions as they do visibly physically disabled women of color. You are public property, a game show riddle to figure out, a problem to solve.

 

I never felt like my body was my own. It always felt like someone else’s. It was always a never-ending barrage of how it was wrong: too disabled, too ugly, too awkward, too un-feminine, too undesirable, too Asian, too Korean, too uncontrollable, too tragic. Something to be pitied; never desired, never loved.

 

I was raised in a very rural, tight-knit feminist community. The year I was adopted, my adoptive mother, along with 9 other women started the Women’s Coalition of St. Croix, a direct service organization that helped victims of domestic violence, rape and sexual assault. Before that, there were no services on the island for people to go to and because of this, they became a catch-all for families in crisis. I went to countless Take Back the Night marches and helped stuff envelopes and make purple ribbons. I learned early on that violence was everywhere. It was systemic and more than just a couple of “bad apples.” It was happening in every community.

 

In the early days of the Coalition, I would play in the hallway with kids while their mothers sought support. I remember being young and having our neighbor from up the street and her two children spend the night at our house, so they could catch a plane and escape off the island in the middle of the night to escape her abusive husband. I remember going to court cases about domestic violence with my adoptive mother and playing with the other kids while our mothers met for hours on end at meeting after meeting.

 

I am a child of the movement and I witnessed women organizing for themselves when no one else would.

 

I grew up around Audre Lorde and Gloria Joseph, meeting Angela Davis and getting to hear her speak, getting to watch Sweet Honey and the Rock perform and having conversations about oppression at the dinner table. I learned about oppression from an early age and tried to engage my classmates in conversations about their white or male privilege in grade school. But even through growing up in such a politicized community, no one ever taught me about ableism or what it meant to be Asian, East Asian or Korean. No one ever connected the violence they were fighting against with the violence I was experiencing within the MIC. We never talked about my parent’s roles as colonizers on the island or what it meant for a white straight couple to adopt Korean children and decide to raise them on an island with virtually no other Korean people.

 

I was lucky that I got to grow up around proud lesbians (women of color and white women) who had been with their partners for years, and who were as normal to me as the “you can’t beat a woman” T-shirts we wore for the annual Women’s Race fundraiser. I was lucky to be surrounded by lesbian and straight women who consistently got called “dykes who hated men” and “wanted to break up families” because of the anti-violence work they were doing. Lucky that all through my adolescence, my adoptive mother would tell me over and over, “You know, Mia, if you or any of your friends are gay, it’s O.K. You can always come and talk to me about it.” And though at the time, I thought I would die from sheer embarrassment, I look back now and know how lucky I was, as a queer youth to have that kind of support. I wouldn’t fully come into my queerness until the end of college, but I know that no matter who you are—that was rare for that time.

 

I didn’t grow up culturally Korean and had no support in figuring out how to move through the world as an East Asian woman (adoptee with a disability) in the Caribbean and later the South. I remember another queer Korean adoptee once describing it as being faced with a giant puzzle she was left to figure out on her own, with no picture to follow and no instructions to go on. I remember feeling her words in my heart when she spoke and the way her grief, frustration and resilience seemed indistinguishable from each other in that moment.

 

Even when I was asked to speak at this conference, I was surprised, because my story is not usually the queer Korean story told, but it is a queer Korean story. What do we mean when we say “queer Korean?”

 

My story is not the story most people want to hear or are used to hearing. It’s too disabled or not disabled enough; too adoptee or not adoptee enough; too survivor or not survivor enough. It’s not Korean enough, not Asian enough, not immigrant enough, not queer enough, not Caribbean enough, not American enough. It is, I’m sure, like a lot of your stories: complicated and full of contradictions; full of the hard and soft. It’s not easily categorized into neat boxes and requires people to hold multiple truths at the same time.

 

And yet, it is part of the queer and trans Korean diaspora. And so am I. As are you and your stories.

 

I belong everywhere and nowhere at once. We belong everywhere and nowhere at once.

 

 

I know it can be hard just to show up. It can take a lot of courage just to be present. Belonging must be built and grown collectively. And that is part of what we’re doing here today: the work of building and creating belonging. It is a skill we can learn and teach others, a practice we can always be engaged in and a decision we can choose to make at any given moment.

 

I want to acknowledge all of you, for the labor of showing up and being present (especially those of you who were nervous about it), as well as all of those who aren’t able to be with us.

 

There are many who will never know queer Korean community or some who have been so burned by queer Koreans and queer Korean community that they have given up on it. Or those who are afraid to be part of queer and trans Korean community. Or those who long for it so badly, at the very same time that it terrifies them.

 

We often crave, the very things that scare us: love, community, belonging, vulnerability, trust, accountability, family. It reminds me of that James Baldwin quote: “Love takes off the masks that we fear we cannot live without, and know we cannot live within.”

 

I witness this all the time in my transformative justice work. I witness people being terrified of that which they desire most. Whether it is healing, accountability, trust, transformation, vulnerability, truth, belonging or courage. So, they often find endless ways to push it away, distract themselves with something else or they continue to choose their masks again and again.

 

We will all be faced with moments when we have the opportunity to risk lowering our masks—to risk true vulnerability with each other. Those moments when we have a chance to soften and let someone else in and let ourselves out. Those moments when we risk being hurt or having our hearts broken or bruised. Those moments when we can feel just how ill-fitting our masks really are.

 

And we don’t always choose to lower our masks. Many times we choose to tighten our masks closer to us. None of us are perfect and we are all growing. As a queer Korean I talked to earlier this week said, “I’m flawed and we’re all flawed.”

 

But I think everyone who is here for this conference is, in some small way, loosening their mask, even as we cling to it. Even as we peek out a little from behind it. Everyone here, even if it’s small, is letting their desire for queer Koreans, and queer Korean desire, be seen and recognized. Even if many of us would also roll our eyes at the thought of “queer Korean community,” or at the thought of “community.” A lot of us have become jaded and rightfully so. It’s not enough to come together and talk about the good things, we also need to be in principled struggle with each other because that’s how we grow and deepen our connection with each other.

 

I told a queer Korean friend of mine about this conference and they said in a long sorrowful sigh, “I just don’t know what queer Korean community holds for me anymore.” I told another and they scoffed, as if to say, that’s a nice idea, but it’s not possible—or worse, it’s not worth it.

 

Because after all, what is “community?” What is this thing, “community,” that we talk about so much? This thing that we romanticize to no end and that has let so many of us down, even as we refuse to let it go completely? We talk about community all the time, but many of us struggle to know what that actually means and how to actually build it, especially when so many of us are so isolated.

 

I travel from coast to coast and most people I meet do not feel connected to a community. This is especially common for those of us living in the west or under capitalism. Many people don’t even know what community is or how to know if they have it. Folks want to be connected to community, but they don’t feel they are. Even those who are thought of as “in community” often feel lonely and isolated too. And across the board, most people don’t feel like they belong.

 

Maybe this is just a part of what it means to be part of a diaspora. Always feeling in-between; always feeling that familiar longing and grief for what was lost, what was taken, what never should have been. I am part of different diasporas and each one pulls at me constantly. And each one holds that constant refrain: I am, but I’m not; I am, but I’m not.

 

I am Korean, but I’m not Korean. They are my family, but they’re not my family. That is my home, but it’s not my home.

 

I was 25 when I returned to my Korean mother and family for the first time since being given up for adoption when I was a week old. I remember many days, especially in those first days as I struggled with jetlag, waking up on the floor in my parent’s room surprised to find my mother sleeping next to me with her hand in mine. This was a language for which we did not need a translator; a language that couldn’t be translated, even if we had spoken the same language. I remember silently watching her sleep, as she had probably watched me. I remember wishing that I knew her and that she knew me, and knowing that I am her daughter and yet I am not. Knowing that though we share blood, a laugh that fills a room, and an experience that fundamentally changed both of our lives forever, we were also strangers in many ways.

 

We are, but we’re not. We ‘re not, but we are.

We belong everywhere and nowhere at once.

 

 

One of the things I always think of whenever I think about queer and trans Koreans is the way that so many people I know and love stay connected to their families. Though their families often do not understand or are hostile to their queer and trans identities, they refuse to let each other go. Though they might have to hide who they are, for decades, maybe even their entire life, they continue to return to each other. To me, there is something so powerful about that kind of love.

 

I know it is not perfect and there are many painful complexities about it. I know that the silence that is expected in return for connection is dangerous, harmful and neither just nor right nor fair. I know that it can be hard to tell guilt, shame, denial and abuse from love. And—both/and—there is something so deeply magnificent about the ways that we can still love and care and show-up for each other, even through our pain. In the ways that a heart can break and still keep loving at the same time. And how in so many ways, that has everything to do with who we are as a people, both as queer and trans people and as Korean people.

 

I think about the ways that we find each other as queer and trans people, the way that we find each other as queer and trans people of color—as queer and trans Koreans. The ways that we are often raised outside of our queer and trans communities and culture and language and history, but how we find our ways to each other and teach, create and grow our culture together. And I think about how this mirrors many Korean adoptee’s journeys.

 

I think about the many queer and trans Koreans that I’ve known who did not live on the coasts or in big cities and how we were able to find each other and stay connected, even in the face of incredible isolation—we still held on to each other.

 

“Family acceptance” is not just about our biological or immediate families, it is also about “family” in the ways that queer folks have reclaimed that term and made it our own—made it into a balm for our lives. I’m talking about the way queer and trans folks make up our own kind of family. We are kin.

 

It’s not enough to only talk about the homophobia and transphobia we face inside Korean community and family, because we also do damage to each other. We also reject each other, abuse each other, push each other away and fear one another. We also gloss over our differences in favor of convenience, denial or fear. And in many ways it can be even more painful because we are each others kin—we are each other’s queer and trans Korean kin. The stakes are so high and the fall is so great when things go awry—those canyons are so deep. And we often don’t have resources to turn to, as queer and trans people of color, and many of us suffer in silence for years, sometimes for entire lifetimes.

 

We have a lot of work to do within our community, our relationships and our selves.

 

We have to prioritize healing, both individually and collectively because they cannot be separated from each other. I would bet that most of us in this room have at one point or another struggled with our mental health. I would bet that most of us have experienced some type of abuse either from our families, within our relationships or even within our organizing. All of us have trauma and we all carry generational trauma in our bones, breath and cells.

 

How can we work towards any kind of liberation, if we can’t treat each other well? If we can’t build and rebuild trust when it is broken? If we can’t build healthy relationships? If we can’t let each other be human and make mistakes? If we can’t take accountability for harm we’ve caused? If we can’t support survivors in their healing and people who have harmed in their accountability? Most of us can’t even navigate conflict well, let alone violence, harm or abuse.

 

How can we ask other people to treat queer and trans Koreans well, if we can’t even treat ourselves and each other well?

 

What I want for us is healing and transformation. I want us to fight with everything we have to invest in building the skills and commitment we need to be able to face ourselves and each other—and to do it lovingly. To be able to speak our truths and tell our stories and our secrets without fear of losing each other. I want us to be able to risk being vulnerable again and again because you cannot build trust without vulnerability, and true love cannot exist without trust. I want us to call on our queer super powers of desire.

 

As queer people, we know the power of desire and we know how political desire is. And I’m not just talking about who you sleep with, I’m talking about desire in a much more expansive way. I’m talking about desire as that which pulls us towards liberation and that which pulls us towards aliveness. I am talking about that hunger that won’t let us sleep and makes us ache for something more, something true.

 

I want us to learn to desire the true, the messy, the complicated—the human. I want us to desire each other as queer and trans Koreans. I want us to desire queer Korean family and community. I want us to desire queer Korean love.

 

I think about what it means for those of us who continue to show up for this thing that we call “queer Korean community.” Even through our heartbreak and disappointments, even through our hesitations and fear. This is the kind of love and desire that I want us to continue to practice. This is the kind of hope that I want us to live into and pass on to the next generation of queer and trans Koreans who will struggle to find their place and wonder if they belong. Let us be able to meet their longing and fears with our longing and love, so that we may be able to embrace them and all of who they are with all of who we are, whispering, “Yes. Yes, you belong.”

 

 

 

 

 

 

 

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November 6th

tree in fog

[Photo of a tree in the forrest surrounded by fog. Photo by Mia Mingus]

 

Today is November 6th, the day I was brought to the adoption agency to be adopted, the day the adoption agency recorded as my birthday, and the day I celebrated as my birthday for 25 years. It is the day I left my birth family, never knowing if I would return. It is the day I left my first home, my first land. It is the day that a strain of longing was born inside of me for something that I do not even know how to name or explain. It has eaten away at my insides, at times turning me into an empty shell of myself. It has taught me how loneliness can be a comforting friend.

 

My birthday, as is the case for many adoptees, is a complicated web of sticky feelings, some of which I decide to feel or not feel and some that overtake me without consent, pulling me in, down, back and under. November 6th got recorded as my birthday by an industry that profits off of the erasure of my birth family, the convenient construction of someone with no past. My life did not begin when I was placed for adoption; I was already here. Today is not my birthday.

 

I hate the confusion that surrounds my birthday. People still getting confused, “so which birthday do you celebrate?” “When is your real birthday?” Since finding out the truth, sometimes I would rather deny my birthday all together, no celebrations, no worries about what or how birthdays are supposed to feel like to someone who does not even know how to think about her own birth.

 

It only marks another diasporic year that I have spent separated from pieces of myself that may or may not even exist; pieces of my self that made me, created me, but don’t know me. It only marks a deep sadness at having celebrated something that was so wrong for so long, something that wasn’t real, the way sometimes entire decades of my life have felt.

 

It is a part of me, but it is not a birth. It is more like a death, a loss or a closing. And it means talking about things that sit so close to my heart, things that I don’t even completely know how to hold, let alone say. I have been missing korea before I even knew what “missing” was.

 

Having been ripped from one piece of earth and shoved into another, sometimes I think the only land I know, the only land on which I belong, is the shifting tides of the ocean. The place that has always brought me solace and has been able to hold my shifting adoptee disabled korean queer girl self. Sometimes I think that what so many of us are doing, the bravery of finding home and attempting to create it, is something I know nothing about. Something I have no business being a part of. I have no home, but myself, and even that isn’t always true. Belonging is something I know nothing about. Living on the other side of dreaming is nothing I know about, having only ever had dreams, distant blurry memories, to keep me alive.

 

I know I existed before November 6th, even if there is no trace, even if I can’t remember how my mother smelled or my sisters’ six inquisitive eyes gazing at me. I know I knew something about home at sometime, even if it, like everything else got re-written and stamped and filed away.

 

Maybe all adoptees find home in their own ways, maybe some of us never do; maybe our homes are in the leaving, in the moving; in the shifting of the wind that carried so many of us past the horizon. Maybe I belong nowhere; maybe that is how they like it—a living, breathing, constant experiment.

 

36 years ago I left my very first home for another temporary home, a foster home, before being adopted. Six years ago I left Atlanta, the first place that ever really felt like home, to build home in Oakland. Maybe this is a re-birth of some sort, into a second chance at belonging and creating home, a kind of returning all on to itself.

 

I know I knew something about home at sometime, maybe I will find it again.

 

It was not erased, just like me.

 

 

 

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Feeling the Weight: Some Beginning Notes on Disability, Access and Love

This essay was originally published in Issue Ten of Makeshift Magazine.

forsythia

This is a beginning; a dive into waters that I swim every day, but have been taught not to speak about.  I struggle with how to talk about love out loud in a way that holds access and doesn’t diminish love in all its glory, but instead illuminates how ableism twists and threatens love and relationships. Needing to constantly negotiate access for my physical disability within all my relationships in an ableist world has shaped the kind of connection and love I am able to have.  I have been scared to open up the Pandora’s box that holds the intimacies of ableism.  Scared to talk about some of the deepest parts of what disability has meant in my life.

Most days I feel like access and love are like oil and water.  I wonder how the two can possibly coexist.  I am speaking of love broadly, meaning any relationship where there is love, whether that is between friends, lovers, family members (chosen, birth, situational), community members, etc. As a queer disabled woman of color adoptee, I am questioning the very fabric that makes up love and, in particular, disabled people’s access to love—or, rather, the kinds of love (and relationships) that disabled people have access to.  How can disabled people who rely on our loved ones for daily access be our whole selves when that threatens the relationships our access and survival depends on?  And how can this support genuine, deep, loving relationships?

The activist-dreamer-revolutionary part of me believes that access and love don’t have to be separate.  It is the part of me that is committed to revolutionary love, radical love, or whatever it’s being called these days.  It lives off of the idea that somehow, if we work hard enough at this thing called liberation, our lives will be different: institutions, relationships and all.

But my life has proven different.  My lived experience has left me holding one half of my heart in each hand, one for access and one for love, crushed.  I have found myself on cold windy cliffs, staring at the canyon between the two.

I have watched ableism tear apart relationships with people I love.  I have seen access be too much of a barrier for people to be in relationship with each other.  I have made excuses for inaccessibility because I loved people and didn’t want to lose relationship with them.  I have excused racism, sexism, violence, homophobia because I didn’t want to, couldn’t afford to, lose access.  I have asked for access or raised ableism in relationships, only to have those relationships end abruptly. I have stayed in relationships for access and I have been too afraid to enter into relationships because of access. I have had access held over my head, leveraged for able-bodied supremacist means, or treated like a reward for good behavior.  I have had access made invisible or belittled by loved ones; I have had to make access happen so the person providing access didn’t know they were.  I have kept parts of myself from people I love because I was afraid to, didn’t know how to, be whole and complex in the context of needing access.

This is the cruelty of ableism: it robs us from each other.  This is the weight of access.  This is what gets said in whispers, not on the microphone and at the panel.  This is what gets shared in a fleeting glance between us, disabled, sick, crip folks; a recognition, a silent sigh, an unfocused stare.  This is what we don’t share, don’t know how to share, because it is so instinctual, so ground-level, so what’s-the-point-it’s-never-going-to-change.  This is the air I’ve breathed since I can remember, as a disabled child, never knowing it could be any different—never having been able bodied.

The weight of inaccessibility is not logistical.  It is not just about ramps, ASL interpreters, straws and elevators.  It is a shifting, changing wall—an ocean—between you and I.  It is just as much feeling and trauma as it is material and concrete.  It is something felt, not just talked about.  It is made up of isolation from another night at home while everyone else goes to the party.  The fear of being left by the people you love and who are supposed to love you.  The pain of staring or passing, the sting of disappointment, the exhaustion of having the same conversations over and over again.  The throbbing foolishness of getting your hopes up and the shrinking of yourself in order to maintain.  It is an echoing loneliness; part shame, part guilt, part constant apology and thank you.  It is knowing that no matter how the conditions around me change, my body will still not be able to do certain things—it will still need other people, it will still signal dependence, it will still be disabled.

At 30, I have experienced many different kinds of beautiful love, largely because I have had the privilege of not being locked away in an institution, group home or my family’s back room like many disabled people.  And indeed, to question the love I have been honored to experience on this page is terrifying and puts my current relationships, love and access at risk.  But these are the parts of disability justice and liberation that keep me up at night, that have hurt more than any ableist remark, that have left more scars than any surgery.  This is the underbelly of ableism.  This is what I fear we will be left to wrestle with after every building is made accessible and every important policy is passed.  This is what I desire as a queer disabled woman of color adoptee: to be able to love and not have access used as a weapon, and to be able to have access without the fear of losing love.

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Moving Toward the Ugly: A Politic Beyond Desirability

*Femmes Of Color Symposium Keynote Speech, Oakland, CA (8/21/11)

water color painting of an octopus done in greens, yellows, oranges and pinks.Good afternoon, and thank you for having me.  It is lovely to be here with you all.  Thank you to the symposium organizers who have asked me to be here and for your hard work putting this gathering on.  And thank you to ALL the folks who have made it possible for us to be here, including the people who built this building and who clean it and care for it everyday; including the people who are being violently exploited in this country and around the globe for their resources and labor so that we can exist in this air conditioned hotel with access to clean water and food, able to sit in relative safety from military attacks or the police barging in.  And including and honoring native and first nations communities upon whose land we are currently on and whose colonization and genocide have also allowed us to be here. For this too, must be part of our work, for it is intimately connected to being femme.

I would like to call into the room the many other comrades who move with me in this work for community, revolution and liberation.  Especially, other queer disabled women, gender non- conforming and trans people of color.  I do this work with and for them as well as for those yet to come.  I do this work because it is what I wish I had had when I was growing up and coming into political consciousness.

I want to bring them into the room because I want to seriously resist, challenge and shift a culture of celebrityism in our movements.  I do not, and cannot do this work alone.  It is built on the backs of poor people, queers, women of color, disabled folks and so many more who have come before me.  It has taken so much for me to be able to be here today as I am, about to speak to you about being femme as a disabled queer woman of color.  Has taken so much for us to even get to the point where gender and femme would be considered worthy political subjects to speak on.  Taken so many (in particular) women of color who have struggled long and hard to claim a place and be seen as women against the loud static noise of white-womanhood; who have fought to connect gender and race and left a legacy of brilliant work, poetry and story for us to learn from.  Taken so many disabled women of color working to have our lives seen (by other women of color) and our bodies understood as worthy, refusing to let disability be in opposition to “woman.”  Refusing to let able-bodied femmes dictate what femme gets to be and demanding accountability to ableist notions of gender, beauty, sexuality and desire that supposedly represent “all of us.”  Thank you.

It is important to say that I can only speak from my own lived experience, nothing else.  I cannot and do not speak for all disabled people or all adoptees or all queer people.  I cannot and do not speak for all queer disabled women of color or all queer people of color.  I do not speak for the entire disability justice movement—or any other movement.  The disability justice movement, like all movements, is large and diverse and I could never speak or represent it all.

I do this work in service of community.  I tell my story with the knowing that our stories are tools for liberation.  I speak knowing that all of our voices are important.  I speak to leave evidence for the people like me who are searching for reflection and recognition and a “yes, we exist.”  I speak to leave evidence for folks who have been told that disability is not as important as race, or that gender justice will have to wait until after class equality is won.  For folks who have been told that how you feel is less important than what you think; for those who don’t have the luxury of being able to rattle off 10, even 5, writers or books that reflect their identities or experiences.  Those of us who straddle the lines between multiple oppressed communities. For those of us who are working to end violence for all of us, not just some of us. For those of us who truly believe that no one’s safety is more important than anyone else’s, even when we feel unsafe…

I’d like to start our time together with a moment of breath and awareness for this work and what we are holding.  I would like to remind us of our bodies and honor them as we hold the work of those of us who get the lived experience of being femmes of color in liberation and ending violence and oppression so that we all may shine; not just some of us.  It is not easy work and I think it is important to recognize the toll it takes on our bodies, hearts, minds and spirits day in and day out.  I want to acknowledge that many of us here are survivors of one form of violence or another, many of us have been witness to violence; many of us have been violent, caused harm, colluded in violence, willingly or not; and all of us have been impacted by a culture of relentless violence, especially towards women, gender non-conforming and trans people of color, whether they identify as femmes or not.  I would like to acknowledge that we carry legacies of abuse, trauma and violence with us everyday, into our work, into our relationships, into this room.  Our stories about gender and race and class and ability and size and immigration and family are carried in our bodies, breath and spirit …AND we also bring legacies of resistance and survival and love in the face of silence and erasure that carry us through, we bring those into this room as well and they are also with us all the time.   We bring legacies of resiliency that are deep and strong and which we are a part of.  And in all of our work we have a responsibility to grow and cultivate resiliency, just as much as we resist the current systems at work.  We must not only fight against the world we currently have, but also be working to create the kind of world that is inspired by our deepest desires for our selves, our families (whom ever they may be, including chosen family) and our communities.

And it is from this place, where I would like us to always start.  From the world we want, the world we collectively desire.

I always think it is important to say that I’m here today as a queer, disabled, korean woman, transracial/transnational adoptee, raised in a US territory in the Caribbean.  None of which are more or less important.  For me, these are not just descriptive terms; they are political identities, based out of my own and other people’s lived experiences, and I understand them—all of them—to be powerful ways of moving through and understanding the world…

What I have learned from living in the south has helped me to survive as a queer person; and what I have learned from being adopted has helped me to survive as a disabled person.

To me, femme must include ending ableism, white supremacy, heterosexism, the gender binary, economic exploitation, sexual violence, population control, male supremacy, war and militarization, and ownership of children and land.

Ableism must be included in our analysis of oppression and in our conversations about violence, responses to violence and ending violence.  Ableism cuts across all of our movements because ableism dictates how bodies should function against a mythical norm—an able-bodied standard of white supremacy, heterosexism, sexism, economic exploitation, moral/religious beliefs, age and ability.  Ableism set the stage for queer and trans people to be institutionalized as mentally disabled; for communities of color to be understood as less capable, smart and intelligent, therefore “naturally” fit for slave labor; for women’s bodies to be used to produce children, when, where and how men needed them; for people with disabilities to be seen as “disposable” in a capitalist and exploitative culture because we are not seen as “productive;” for immigrants to be thought of as a “disease” that we must “cure” because it is “weakening” our country; for violence, cycles of poverty, lack of resources and war to be used as systematic tools to construct disability in communities and entire countries.

I would like to share two quotes with you that resonated with me for today:

“Those of us who stand outside the circle of this society’s definition of acceptable women; those of us who have been forged in the crucibles of difference – those of us who are poor, who are lesbians, who are Black, who are older – know that survival is not an academic skill. It is learning how to stand alone, unpopular and sometimes reviled, and how to make common cause with those others identified as outside the structures in order to define and seek a world in which we can all flourish. It is learning how to take our differences and make them strengths.”  — Audre Lorde

 

“To tell the truth is to become beautiful, to begin to love yourself, value yourself. And that’s political, in its most profound way.”  —June Jordan

 

I want to say upfront that I don’t identify as femme.  I have struggled with identifying as Femme.  I don’t politically identify as “Femme,” even though I get the lived experience of being a femme of color in so many ways.  And frankly, much of this is because I have had horrible interactions with self-identified femmes of color, much of which has been because of their ableism and ignorance around how ableism, white supremacy and gender oppression get leveraged everyday in service of each other.  Much of it has been because of the palpable culture of ableism within queer people of color community.  And some of it has been because I have spent most of my life as a physically disabled child, youth and adult adoptee of color trying to find my way into “human,” let alone “woman.”

As a disabled child shuffled through the medical industrial complex and as a baby of color shipped across the world to “new parents,” I have felt more like a different species, a freak, an object to be fixed/saved, a commodity.  Like someone who has been owned and whose body has never felt like it was mine.  Like someone who they were trying to make human (read: able bodied, white), if only the surgeries had worked and the braces had stuck.  Like something that never could even get close to “desirable” or “feminine” or “woman” or “queer.”  Like ugly.  Not human.

Many people assume that I identify as femme and even call me femme, but the truth is that “femme” has not felt like a term where I belonged nor was it a place I wanted to be.   I rarely see femme being done in a way that actually challenges and transforms gender, rather than colluding in an alternative enforcing of gender.  Many of the people in this room are more invested in being beautiful and sexy than being magnificent.  Even something as small as the time I nervously asked a comrade femme of color friend of mine to wear sneakers in solidarity with me, instead of her high heels, because I didn’t want to be the only one and didn’t want to get chided from other femmes of color about my shoes (as so often has happened).  She said “no,” but she (of course) “totally didn’t think there was anything wrong with wearing sneakers.”

It seems so basic in our communities, but I think we need to stop making assumptions about each other’s identities and make distinctions between how someone identifies verses what someone’s lived experience isWe need to make the distinction between descriptively femme and politically femme.

In my disability justice work this comes up a lot.  Especially for disabled women of color.  Over and over I meet disabled women of color who do not identify as disabled, even though they have the lived reality of being disabled.  And this is for many complicated reasons around race, ability, gender, access, etc.  it can be very dangerous to identify as disabled when your survival depends on you denying it.

When I say “descriptively disabled”, I mean someone who has the lived experience of being disabled.  They may not talk about ableism, discrimination or even call them selves “disabled,” but they know what it feels like to use a wheelchair, experience chronic pain, have people stare at you, be institutionalized, walk with a brace, be isolated, etc.  There are many people who are descriptively disabled who never become or identify as “politically disabled.”  When I say “politically disabled,” I mean someone who is descriptively disabled and has a political understanding about that lived experience.  I mean someone who has an analysis about ableism, power, privilege, who feels connected to and is in solidarity with other disabled people (regardless of whatever language you use).  I mean someone who thinks of disability as a political identity/experience, grounded in their descriptive lived experience.  (The same is true for descriptively queer, descriptively woman of color, descriptively adoptee and so on.) 

And just to be clear, I believe that in order to politically identify as queer, disabled, femme, woman of color, one needs to have a descriptive lived experience to ground it in.  my political identities come directly out of my lived experience.  I never used to identify as disabled (period), even though my life was extremely disabled.  It was not until 1998 that I even started to describe myself as disabled—and even then, it was only descriptively.  It wasn’t until 2002 that I started identifying politically as disabled.

Doing disability justice work, we struggle with creating spaces that are based on how one identifies, because often times, the disabled people who identify as “(politically) disabled” are often white disabled people.  As people with multiple oppressed identities doing work with (our) folks on the margins of the margins of the margins, we need to think carefully about how we are inviting people into spaces and how we meet people where they’re at.

I am descriptively femme of color.  I know this.  This has always been my lived experience.  I was femme before I was queer.  I was grappling with how to navigate gender as a tiny Korean transracial and transnational adoptee disabled girl queered by my physically disabled body.  I grew up in a feminist community, around other powerful femmes of color, but none of whom identified that way.  There was no word for it, it was… just their life.  It was how they had to learn to be, to survive.  It was what they had crafted out of the fires of their desires and loving.  It was part of how they had learned to be magnificent.

Their gender was about being a grounded force to end violence. Their gender was about forging dignity out of invisibility that could slice through femininity that would rather be pretty than useful.  Their gender was about answering the question, what is the work you are doing to end violence and poverty, not what shoes are you wearing. Their gender was about feeding family and raising children collectively; organizing for themselves when no one else would. Their gender was a challenge to the world they lived in that was trying to erase them.

As femmes of color—however we identify—we have to push ourselves to go deeper than consumerism, ableism, transphobia and building a politic of desirability.  Especially as femmes of color.  We cannot leave our folks behind, just to join the femmes of color contingent in the giant white femme parade.

As the (generational) effects of global capitalism, genocide, violence, oppression and trauma settle into our bodies, we must build new understandings of bodies and gender that can reflect our histories and our resiliency, not our oppressor or our self-shame and loathing.  We must shift from a politic of desirability and beauty to a politic of ugly and magnificence.  That moves us closer to bodies and movements that disrupt, dismantle, disturb.  Bodies and movements ready to throw down and create a different way for all of us, not just some of us.

[*share North Carolina story]

The magnificence of a body that shakes, spills out, takes up space, needs help, moseys, slinks, limps, drools, rocks, curls over on itself.  The magnificence of a body that doesn’t get to choose when to go to the bathroom, let alone which bathroom to use.  A body that doesn’t get to choose what to wear in the morning, what hairstyle to sport, how they’re going to move or stand, or what time they’re going to bed.  The magnificence of bodies that have been coded, not just undesirable and ugly, but un-human.  The magnificence of bodies that are understanding gender in far more complex ways than I could explain in an hour.  Moving beyond a politic of desirability to loving the ugly.  Respecting Ugly for how it has shaped us and been exiled. Seeing its power and magic, seeing the reasons it has been feared. Seeing it for what it is: some of our greatest strength.

Because we all do it.  We all run from the ugly. And the farther we run from it, the more we stigmatize it and the more power we give beauty.  Our communities are obsessed with being beautiful and gorgeous and hot.  What would it mean if we were ugly?  What would it mean if we didn’t run from our own ugliness or each other’s?   How do we take the sting out of “ugly?”  What would it mean to acknowledge our ugliness for all it has given us, how it has shaped our brilliance and taught us about how we never want to make anyone else feel?  What would it take for us to be able to risk being ugly, in whatever that means for us.  What would happen if we stopped apologizing for our ugly, stopped being ashamed of it?  What if we let go of being beautiful, stopped chasing “pretty,” stopped sucking in and shrinking and spending enormous amounts of money and time on things that don’t make us magnificent? 

Where is the Ugly in you? What is it trying to teach you?

And I am not saying it is easy to be ugly without apology.  It is hard as fuck.  It threatens our survival.  I recognize the brilliance in our instinct to move toward beauty and desirability.  And it takes time and for some of us it may be impossible.  I know it is complicated.  …And I also know that though it may be a way to survive, it will not be a way to thrive, to grow the kind of genders and world we need.  And it is not attainable to everyone, even those who want it to be.

What do we do with bodies that can’t change no matter how much we dress them up or down; no matter how much we want them to?

 

 What about those of us who are freaks, in the most powerful sense of the word?  Freakery is that piece of disability and ableism where bodies that are deformed, disfigured, scarred and non-normatively physically disabled live.  Its roots come out of monsters and goblins and beasts; from the freak shows of the 1800’s where physically disabled folks, trans and gender non-conforming folks, indigenous folks and people of color were displayed side-by-side.  It is where “beauty” and “freak” got constructed day in and day out, where “whiteness” and “other” got burned into our brains.  It is part of the legacy of Ugly and it is part of my legacy as a queer disabled woman of color.  It is a part of all of our history as queer people of color.  It is how I know we must never let ourselves be on the side of the gawking crowd ever again in any way.  It is the part of me that doesn’t show my leg.  It is the part of me that knows that building my gender—my anything—around desirability or beauty is not just an ableist notion of what’s important, but will always keep me chasing what doesn’t want me.  Will always keep me hurling swords at the very core of me.

There is only the illusion of solace in beauty. If age and disability teach us anything, it is that investing in beauty will never set us free.  Beauty has always been hurled as a weapon.  It has always taken the form of an exclusive club; and supposed protection against violence, isolation and pain, but this is a myth.  It is not true, even for those accepted in to the club.  I don’t think we can reclaim beauty.

Magnificence has always been with us.  Always been there in the freak shows—staring back at the gawking crowd, in the back rooms of the brothels, in the fields fresh with cotton, on the street corners in the middle of the night, as the bombs drop, in our breaths after surviving the doctor’s office, crossing the border, in the first quiet moments of a bloody face after the attack is done.  Magnificence was there.

Magnificence was with me in the car rides home after long days being dehumanized, abused and steeled in the medical industrial complex.  It was there with me when I took my first breaths in my mother’s arms in Korea, and a week later those first days alone without her realizing I wasn’t going home.

Magnificence has always been with us.

If we are ever unsure about what femme should be or how to be femme, we must move toward the ugly.  Not just the ugly in ourselves, but the people and communities that are ugly, undesirable, unwanted, disposable, hidden, displaced.  This is the only way that we will ever create a femme-ness that can hold physically disabled folks, dark skinned people, trans and gender non-conforming folks, poor and working class folks, HIV positive folks, people living in the global south and so many more of us who are the freaks, monsters, criminals, villains of our fairytales, movies, news stories, neighborhoods and world.  This is our work as femmes of color: to take the notion of beauty (and most importantly the value placed upon it) and dismantle it (challenge it), not just in gender, but wherever it is being used to harm people, to exclude people, to shame people; as a justification for violence, colonization and genocide.

If you leave with anything today, leave with this: you are magnificent.  There is magnificence in our ugliness. There is power in it, far greater than beauty can ever wield. Work to not be afraid of the Ugly—in each other or ourselves.  Work to learn from it, to value it.  Know that every time we turn away from ugliness, we turn away from ourselves.  And always remember this: I would rather you be magnificent, than beautiful, any day of the week. I would rather you be ugly—magnificently ugly.

Thank you.

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Reflections On An Opening: Disability Justice and Creating Collective Access in Detroit

This post was originally written for the INCITE Women of Color Against Violence blog.

This summer, Detroit was an opening for me. And not just because it was the first time that there was a Disability Justice track at the Allied Media Conference (AMC) or because of any workshop or plenary I attended. Detroit was an opening for me because I got to spend over a week creating collective access with a group of twenty-three disabled folks and our non-disabled comrades. I got to spend eight days getting a glimpse into a different world and experiencing a kind of interdependency that let me loosen my shoulders; that let me breathe.

Creating Collective Access (CCA) was about re-thinking how we, as disabled and chronically ill people, engage in movement spaces. This was about imagining something more and knowing that we had to do it for ourselves because it is so rare for movement spaces to ever consider disability and access in ways that go beyond logistics; in ways that challenge the ableist culture of our work. This was about being very clear that we wanted to shift the individualized and independent understanding of access and queer it and color it interdependent. This was about building crip solidarity. We wanted to create a liberated space. We would pool our resources: body and ability, financial, material and more. We would not just think about disability as separate from class, age, race, queerness, family, children, gender, citizenship, violence, but we would understand it as intimately connected. We would think, not just about “conference and workshop time,” but we would also think about social time and what social spaces were accessible and how we would make sure no one was isolated or left out. Because in our movements much of the relationship building, socializing and bonding is done in very inaccessible ways in very inaccessible places—we know this all too well.

It all started with need.   About a month before the AMC, access was the number one thing on our minds.  What will we do?  How will we get to food and afford enough personal attendants to come with us?  Who will push wheelchairs?  How much walking will there be?  Who will help you go to the bathroom?  How will we manage the pain, the schedule, and the pace?  Where will we stay and will it be accessible (the majority of community housing just wasn’t an option)?  How much will access cost?

We were hit with the reality of having to be in another city for an extended period of time, under intense conditions; the same intense conditions that frame most conferences.  We knew it would be long days, stretching into late nights.  We knew everyone would be stretched thin and we knew that meant something totally different for us.  We knew we could make it through, by squeezing ourselves, as we’ve done before, into ableist practices of how bodies should function and perform, but we also knew what that would mean for our bodies (and our hearts) while it was happening and once it was all done.  We wanted to be able to stay in our bodies as much as possible, take care of our disabled selves, and be part of the community that was coming together for the AMC and the USSF.  We wanted to be whole and connected to ourselves, each other and other activists and organizers—was this possible?

We started to dream: how could we use this as a way to build community, put disability justice into practice and deepen our understanding and analysis of what it means to do this work together?  What if we invited other crips to do this with us—crips who were coming to the AMC and were probably agonizing over the very same things?  What if we did community care in a way that made space for many different kinds of bodies?  What if we made a commitment to each other to move together and centered our access and care around queer and trans crips of color?  What if we tried to create the kind of world we want to live in?  We do it in our disability justice work, so why not try and create it for the time we’re in Detroit?  CCA began as a hope and a dream to make what we need.  CCA is a reflection of the courage, resiliency, and creativity that disabled folks have in the face of an inaccessible and ableist world.

The bottom line was we needed each other.  Interdependency is not a choice.  We were not going to be able to get through the AMC and traveling to another city without each other.  We didn’t know what the environment would be like, how many people would be there and what kind of access needs would arise on-the-spot, as they always do.  We would be building the plane as we flew it.  The thought of thousands of social justice folks from the left converging at the USSF was an anxiety-provoking access nightmare, in and of itself.   But we knew if we had each other, we would be okay.  Together, the three of us, three queer crip women of color, got to work.

We drafted and put out a call to other disabled folks who were coming to Detroit and who wanted to be part of a community-led access effort.  We made a blog, explaining what we were trying to do and our vision.  We were clear that this was interdependent and we invited people to be part of creating this with us.  Leah worked to get scent free information out to folks and create a scent free room, while Stacey and I worked on a basic structure for access and communication. We scrambled with three weeks to go and came up with a model of pods.  We knew the disabled people who were coming would already have some type of access plan in place and we knew it would be with people they trusted and had relationships with.  Together, each grouping formed a pod and our goal was to connect the pods to each other.  We asked people to tell us about their pod’s access needs and what they could offer and contribute.  It was broad.  Some people were able to walk and get food, others were better at coordinating; some people had access to credit cards and others would need cash to be available; some people had personal attendants or able bodied friends/family members with them who could also help with getting food, driving and pushing wheel chairs.

I had done collective access before, but with three people, including myself; or for a disability justice meeting or when traveling with one other disabled comrade.  I had never done anything like this before with twenty-plus people, half of whom, I had never met before, on our way to a city that many of us had never been to, all in a container of shifting how we understood access, past just survival.  This time, we were all jumping together.  And we flew.

We called ourselves the Pod People and we worked seamlessly together with great affection and enjoyment.  It was truly a collective effort, centered around a simple value of care.  Everyone pitched in getting food, helping to serve food, audio describing, reaching, pushing, texting, calling, asking, offering.  We schemed together to get more accessible rooms opened for us in the dorms, access to a refrigerator and the accessible shower key from the dorm staff.  Everyday, we had lunch and dinner together, no one had to worry about not being able to eat because they couldn’t get into a restaurant, couldn’t get to the grocery store or couldn’t walk far enough.  And no one had to worry about being isolated while they were eating, as often happens to disabled people when they are in movement spaces.

When there were social events, we all talked about it and had two groups, the folks who wanted to go and the folks who wanted to stay in; we made sure no one was left out and checked in about access all the time.  We stayed up the first night after dinner talking about disability and race and queerness and invisible disabilities and coming out as disabled and bodies and gender and geographic location and our struggle to find community.  Some people were just starting to identify as disabled, having never called themselves “disabled” out loud before.  Others had been doing disability justice work for years and still others had been doing this work for decades.  A lot of us were trans, gender queer and gender non-conforming, most of us were women of color and almost all of us were queer.  We formed an almost all disabled space that centered all of who we were.  Amazing.

One of the most important pieces of CCA for me was a continued commitment to move together as crips and comrades.  Every time I attempt to move through the world with other disabled folks, I am always so astounded at how hard it is for disabled people to stay together, literally.  I watch how the world separates, isolates and divides us, so that we cannot move together.  I watch how it is constructed for us to move with non-disabled people, instead of each other; and how it discourages folks with different disabilities from moving together.  Trying to move with a group of disabled people with different disabilities is very hard, takes enormous amounts of problem-solving, energy and creative solutions.  To me, one of the most powerful opportunities of CCA was another chance to figure out how we can stay together and what it would take to create a world where we understand the weight of what “access” means.  So that when I say something is inaccessible, you don’t just think “there’s no ramp” or “there are no places to sit” or “there’s no close, accessible, free parking.”  Instead, you feel. You feel the weight of what inaccessibility means to us.  You understand inaccessibility to mean isolation, shame, exclusion, disappointment, loneliness, anger, privilege, sadness, loss of community and disconnection.  For eight days, it was amazing to be with people who know what “accessibility” means; who know and feel the weight of it; and who are working to transform it.

I learned so much and was rejuvenated from my time with the pod people.  Disability requires us to re-think “independence” and how we engage in movement spaces, down to how we think, move and communicate, down to our very bones.  As movements committed to social and economic justice, where are the disabled people in our communities, organizations, bases, and movements?  Are they isolated?  How are we re-imagining access in ways that include, but are not limited to disability; that encompass class, language, gender, mamas, parents and children?  What would access beyond logistics look and feel like?  Access that allows people to not just be included, but maintain their dignity and connection to their communities?  How do we care for each other in ways that allow us to stay connected to our bodies and stay connected to each other in order to build the kind of world that can care for us all?  We are learning and trying and learning and practicing and learning again.

With my deepest gratitude to the pod people: I will forever be changed.

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Desiring Revolutionary Bodies and Movement(s)

I believe that disabled people have so much to give and so much to teach from our lived experiences.  We have so much that our movements can learn from.  We have so much to learn from each other, cross-disability.  I believe that disability justice can be something that shifts and changes how we have been taught to organize; how we have been taught to move.  There are many different ways of moving through the world.  And the more I learn, the more mistakes I make, the more victories I have, the more time I take to reflect, center and listen to myself and those around me, the more I keep coming back to disability justice.

For so long I have tried to (been forced to) squeeze myself into ableist ways of doing things.  The way I thought about activism and the revolutionary body was never with disability at the center.  And I was so hungry for things that reflected me, that I settled for crumbs: a little queer here, a little people of color here, a little Asian here, a little feminist here, a little woman of color there.  And part of it was that I wasn’t raised by disabled parents and family members and the community I was raised in, though disability was everywhere you looked, never talked about disability—and certainly not in a political way.  And I was so used to doing without and being separated from pieces of myself—being cut right down the middle; having to survive on crumbs as a transracial and transnational adoptee of color, that I didn’t ask.  I didn’t say what I knew inside:  something is wrong.

And I was seduced by ableism, as we all are, as I still fight against.  The seduction of ableism is so strong, sold to us as so absolutely desirable that we don’t notice when there are no disabled people in our lives.  We don’t notice when we never have to think about disability and ableism.  In fact, we prefer it that way.  The seduction of being desirable—of even the possibility of being desirable—is enough to keep us hooked.  As I fight against the ableism inside of me, it at once forces me to shift and queer what desire means.  It at once forces me to shift and queer what I desire.  It forces me to shift and queer racist, gendered and capitalist notions of desire; of who and what is desirable.

And as revolutionaries, I believe we have to shift and queer the kinds of revolutionary bodies, minds, thinking, and movements that we desire as well.

Most of us are beating down the door, trying to get in to have access to the skills, conversations, strategy and knowledge that is kept at the top/bottom of stairs, bound by language, locked by pace.  Most of us are aching for cross-movement work with an integrated anti-ableist analysis and commitment that includes (but doesn’t stop at) access; that understands access within a political framework.  Some of us have turned away completely—why should we fight to be a part of something that doesn’t even want us?  That doesn’t even include us?  That doesn’t even desire us—that doesn’t even know the first thing about how to desire us; about how we want to be desired?  Some of us will not or cannot turn away, because these are our people too, we are you and you are us—how can we be divided?  You are my people too, am I not yours?  So we have carved out ways that we can stay connected anyway we can, pushing for more; slowly and firmly.  And many of us have felt all of these at one time or another.  And all of us are doing our work: to survive, create, organize, fight, build community, build movement, and tell our stories.

Someday we will all look back at the segregation of our organizing and movements. How many cross-movement, social justice, multi-issue organizations, groups, collectives working for liberation would dare move forward with all men or with all whites?   Someday we will talk about the days long ago when non-disabled folks never included disabled people, politics, histories and legacies in their work.  Because it is our work, we are each other in so many ways.

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